National Ovarian Cancer Coalition
National Ovarian Cancer Coalition's (NOCC) mission is to raise awareness about ovarian cancer and to promote education about the disease. By dispelling myths and misunderstandings, the Coalition is committed to improving the overall survival and quality of life for women with ovarian cancer.
Goals
- To be the comprehensive resource on ovarian cancer with complete and accurate information
- To promote and expand patient, public and professional ovarian cancer education and awareness
- To promote advocacy efforts to strengthen the voice of the ovarian cancer movement
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Number of Employees and Volunteers
- 9 employees
- More than 10,000 volunteers
History
In 1995, NOCC was incorporated by founder Gail Hayward, an ovarian cancer survivor, as the country's first comprehensive organization providing awareness and education about ovarian cancer. With the assistance of a prestigious medical advisory board and board of directors, she developed the first national information hotline 1-888-OVARIAN and the www.ovarian.org web site, initiated the National September Ovarian Cancer Awareness public information campaign, and began a network of affiliated volunteer-led divisions across the country that currently number close to 60.
Needs
All funds raised will support new and ongoing public and professional education and awareness programs.
Accomplishments
Expanded to approximately 60 licensed Divisions actively involved in advancing ovarian cancer education and awareness with more than 1 million people reached annually
- Expanded continuing medical education symposia for medical professionals
- Website received over 2 million hits
- Began offering key publications in Spanish as well as in English
- Successful nationwide awareness campaign placed tens of thousands of signs and symptoms materials in libraries and other public venues
- Successful nationwide distribution provided air time for new television and radio public service announcements
- Launched a new program to provide one-on-one telephone support for patients wishing to speak directly with survivors
- Established a formal Speaker's Bureau training program for Division volunteers with a standardized curriculum
Future Events / Initiatives
Future initiatives planned for 2004-2005 are focused on expanding education and awareness to a more diverse audience.
- Expansion of the National Speaker's Bureau Educational
- Continuing medical educational symposia for health care professionals
- The National Leadership Development Conference for Division representatives will be held November 11-14 in Fort Lauderdale, Florida
- Sponsorship of a national touring art exhibit body image ~ body essence. For more information click here
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Ovarian Cancer National Alliance
A consumer-led, national umbrella organization, the Ovarian Cancer National Alliance's mission is to save women's lives by improving public and professional understanding of ovarian cancer and by advocating for better diagnostics, treatments and a cure.
Goals
- To raise awareness among women and health care professionals of the risks, symptoms and proper treatment of ovarian cancer.
- To train advocates to conduct education programs in their own communities.
- To advocate for more federal research dollars and for policies and programs ensuring quality care.
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Number of Employees and Volunteers
- 10 employees
- Thousands of volunteers
History
In September 1997, leaders from ovarian cancer groups joined forces to form OCNA with the primary goal of establishing a coordinated national effort to place ovarian cancer education, policy, and research issues prominently on the national agendas of national policymakers and women's health care leaders.
Needs
Funds raised will help expand education and awareness programs to reach more women and health care professionals about the importance of knowing the risks, symptoms, and proper treatment of ovarian cancer.
Accomplishments
- Launched our medical student education project — "Survivors Teaching Students: Saving Women's Lives." The project brings trained ovarian cancer survivors into medical schools during medical students' ob/gyn rotation to present their experience with misdiagnosis and poor prognosis. Over 500 medical students were reached in one year alone.
- Expanded training programs, in which partner member groups across the country are provided with the tools to conduct public education programs in their own communities.
- Conducted a major public service announcement campaign, which reached tens of millions of people nationwide with compelling messages about the importance of early detection.
Future Events / Initiatives
- 7th Annual Advocacy Conference from September 30 – October 2, 2004 in Washington, DC, drawing over 350 advocates from across the country each year. The presenters will represent the cream-of-the-crop ovarian cancer researchers and cancer care providers, distinguished scholars, policy makers, and representatives from local and federal health care agencies. Click here for more information.
- Enhance our professional education programs to reach primary care physicians through national and regional meetings.
- Expand our outreach to minority and underserved women, and mounting a media campaign to get life-saving messages about ovarian cancer into more communities across the country.
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Ovarian Cancer Research Fund
The Ovarian Cancer Research Fund (OCRF) is devoted to the formulation of early diagnostic treatment programs and research towards the ultimate conquest of ovarian cancer.
Goals
- To advance ovarian cancer research in the United States and find a cure
- To advance outstanding researchers early in their careers, whose projects focus on early detection, screening and basic translational research
- To changing the course of this deadly disease
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Number of Employees and Volunteers
- 5 employees
- 20 volunteers
History
OCRF was founded in December 1994 by Sol Schreiber to honor the memory of his wife Ann, a distinguished public administrator, and her courageous five-year battle with ovarian cancer. Under the leadership of Liz Tilberis, the beloved late editor-in-chief of Harper's Bazaar, OCRF experienced tremendous growth and gained national prominence as an organization committed to changing the course of this deadly disease. Drawing on her numerous contacts, Liz helped unite the worlds of fashion, beauty, and entertainment around this important cause.
Needs
All funds raised will go directly to OCRF's research programs.
Accomplishments
- Dedicated more than $6 million over the past 6 years to ovarian cancer research.
- Reached out to new audiences nationwide through the Reebok Women's Triathlon series.
- Raised $1.3 million OCRF's signature fundraiser, Super Saturday.
Future Events / Initiatives
- Continue to fund cutting-edge research programs.
- Continue to develop our Web site to provide users with easy access information about our programs and events, as well as provide the ability to make online donations.
- Continue to raise significant funds through foundation and corporate giving to increase our annual funding of researchers, and expand our educational outreach programs.
- 2004 Reebok Women's Triathlon Series Nationwide (Summer & Fall 2004):
OCRF is once again the official charity of the Reebok Women's Triathlon Series. Click here for more information
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